This is a photo diary of our day.
Saturday, December 20, 2014
Thursday, December 18, 2014
I think my new steroid works! (Note: I have rheumatoid arthritis as well as lupus)
I woke up this morning with flat hands for the first time in over a year.
Flat hands? Yes. Normally I wake up with them balled in fists and I unpeel and stretch them. That's the work of arthritis for ya.
But today they were laying flat across my body and were relaxed. It was a joyous feeling to have some relief!
I posted a "steroid selfie" yesterday on Facebook as I noticed the facial puffing. I wanted to face it, but I have to say having some pain relief made it no big deal :). I'll be the puffy face for less pain. Good trade.
Wednesday, December 17, 2014
I was diagnosed last week but just got to the business of facing it today.
I'm frustrated. I thought roller skating and I were just on a temporary emotional hiatus. Til I stopped being sore all the time. And felt energetic and hopeful.
But it looks like anything strenuous will cause me more pain. Ditto for hip hop dancing.
Today as a result of the steroids my eyelids and under eyes are swollen to the point of pressure if trying to read or focus on something. Have you seen the size of my bookstack? I feel those shelves crumbling around me if I can't read them.
It feels like my Job moment but I am nervous to be so presumptuous. There are huge problems around the world. Accept my apologies but I'm trying to face this, make sense of it.
I gave up sewing...the only way I contributed to our family income and quite frankly my best talent. I figured if I slowed down with that my arthritis could slow down and heal and I'd come back stronger and better!
So here I am. In need of a passion, a pursuit, a feeling of contribution in this world. My sites are being way way way scaled down in the hopes that I can continue being a loving and present guide to my children. It is hard just meeting the 4 year olds basic needs through the day and getting everyone else where they need to be on time.
It's weird and frankly depressing to me to reduce my goals to that point. I want to be a doer, an achiever, big big big!
I need peace about being small and calm. And feeling loved.
Monday, December 15, 2014
One of my friends mentioned he wanted to dye his hair lavender. He may have meant it as a joke. You know, a nod to my crazy, hair changing ways...
Nevertheless I had to gather inspiration photos for him to peruse to pick the perfect shade. Here's to you, Gremlin!
Wednesday, December 10, 2014
Garbanzo beans (1 can, drained)
1 red onion
1/4 C olive oil
1/2 t salt